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My relationship with my sister, domestic violence, update on where I’m staying + therapy

MY SISTER AND FAMILY

My physio asked me this week what my relationship with my younger sister is like. It got me reflecting on my family even more and I thought I’d write a post about this.

I don’t have much to do with my sister. She lives near the city. She occasionally comes to visit, and has been saying she wants to play badminton with me again, something we did as kids. I got a random text from her a few months ago asking if I wanted to meet her at the trampoline at our mum’s place one night. She had not been speaking with my mum for years so I was surprised. I met her there and bounced on the trampoline with her wearing black angel wings, which I had worn to my psychology appointment earlier that day. We did that thing where you put pressure on the trampoline at particular moments which propels the other person into the air. We played that break the egg game. We then went into the house. Mum had gone to bed, which was good as it would have been weird the three of us together again. We found some of our old childhood toys in the cupboard, such as beanie kids, and brought them into my sister’s old bedroom. Mum had kept the books too, which displayed the entire collection of beanie kids and the new ones that had been released each year. In 1998 there was a rainbow beanie kid called “Proud the Rainbow Bear”. We were impressed how progressive the company was, as same sex marriage has only just become legal in Australia. We looked up how much they’re worth now, but they’re still pretty cheap on Ebay,

We then found some possum puppets and started a puppet play. She kept harassing the poor plush bee with her possum, so I hid it under my old childhood blanket. I then got one of the plastic baby hammers that make a honking noise and hit my sister’s puppet over the head with it.

I rubbed the possum’s hands together, which made it look like it was plotting a murder. My sister suggested talking to people via the puppet now that I’m non-verbal. I started exploring voices for the possum using the app on my phone, which speaks text for me. I was a bit reluctant to see my sister (and in fact, anyone) while non-verbal, but my sister is also autistic and said she has friends who are non-verbal so got it. It wasn’t awkward at all. We found other ways to engage, such as though the puppet play. I made the voice really deep on the app and it sounded incredibly creepy. I then made it high, which suited the possum more, making it sound cute and innocent. Continue reading “My relationship with my sister, domestic violence, update on where I’m staying + therapy”

Touch starvation, mania, and dissociation

I am writing this post backwards. This short introduction is actually the last thing I’ve written, now that I know what the post looks like. It is a bit of a different post to my usual posts. There are three things I talk about in this post, and I have broken them down into different subheadings as my mind’s all over the place and I’m struggling to write a cohesive piece.    

Touch starvation-

Harlow and Zimmerman (1959) were some of the first researchers to show just how important touch is. When given the choice between a wire-mesh “mother” that held a bottle and a soft cloth “mother”, baby monkeys preferred the latter. Touch is the very first way we experience the world and is the foundation for our physical, social and psychological health. Loving, meaningful, consensual touch is important for the following:

  • Pain regulation (touch releases endorphins)
  • Emotion regulation
  • Mood
  • Relaxation
  • Sleep
  • Reading faces
  • Recognising emotions in self
  • Expressing emotion
  • Physical growth (“failure to thrive” is the pediatric term for stunted growth/weight)
  • Immunity and recovery from disease
  • Prosocial behaviour
  • Connection to others

Former inmate Brett Collins shares his experience of solitary confinement with ABC, which can be found on YouTube here. The deprivation of human connection and touch, also called “skin hunger”, is essentially a type of torture. It kills, just as physical abuse or starvation kills. And prisoners are not the only people who experience it. You don’t need prison bars to make a prison. Sadly many people in our society are having a remarkably similar experience to Brett Collins. One election some politicians in my country even suggested having a minister for loneliness is it so widespread. A lot of this boils down to the shift from a collective culture to an individualist one. With this shift, we have seen a movement against co-sleeping, where sleeping separately is said to “teach” infants how to manage on their own. Technology is another factor. A lot of people got a taste of touch starvation during lock down. Continue reading “Touch starvation, mania, and dissociation”

Negligent hospitals, mute, trauma, autistic burn out and the fight for freedom

“You build me up, you break me down. My heart it pounds, yeah you got me. With my hands up, you got me now, you got that sound, yeah you got me.” Ke$ha – TiK ToK

It is the first time I’ve been able to blog since my last post a week or so ago. It’s felt like the longest week of my life. I feel like I could write a whole book on this week alone. The disturbing saga continues, without resolution, like a piano with endless keys which just get lower and lower.

The psych ward only gave me two nights, even though I asked for longer. They wanted to dump me in a facility called PARC, a non-clinical mental health facility, which people stay in for a week as a “step down” from hospital, or a “step up” from home to prevent a hospital admission. But there were questions about my medical stability. I was barely eating and the hospital wanted to do a blood sugar level test which involves pricking your finger but I was scared of the test so refused it. The nurses said they’d come back in half an hour. I then got in the shower when they came to the door to avoid getting the test done. I was so traumatised in general- by life, by the way they just wanted me out when I was acutely unwell- that I became mute. I am still speculating on what is causing my muteness, which I will discuss later, but whatever it was, I just couldn’t will myself to speak. The day of my discharge one of the doctors came in and told me PARC wouldn’t take me if I wouldn’t speak. I felt like she thought I was being manipulative and could blackmail me into talking. I brought up The Shutdown Dissociation Scale research paper on my phone and showed it to her. One of the symptoms is muteness. There is some more great information about the different responses to trauma on this page.

“We don’t follow that here,” the doctor said.

She said if I didn’t go to PARC they’d just be sending me home. I couldn’t believe it.

“So you’re just going to send me home in this state?” I wrote to her, with gestures of disbelief. “This is discrimination against people with disabilities.”

Becoming non-verbal is common in autism when we become overwhelmed, as is shown in the series Heartbreak High, with one of the autistic characters, Quinni, becoming mute for a while after her horrible girlfriend put her through hell.

“I’ll get your discharge papers ready,” the doctor told me. “Have a good day!” Continue reading “Negligent hospitals, mute, trauma, autistic burn out and the fight for freedom”

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