Part 1. Fleeing the city to live with mice
My time away in the country just got worse and worse by the minute. I couldn’t get rid of the mice in the caravan which would keep me awake all night. My friend and I carried a mattress down from her house one night and I slept in the annex, a room adjoining the caravan, but the little shits were in there as well. They kept running through the room all night. I was so exhausted I couldn’t even get up. Continue reading “Reality makes you mad”
Dissociative systems has become a bit of an interest of mine, and I am writing this post to take my mind off how much discomfort I am in physically. Most people will be more familiar with the terms “Dissociative Identity Disorder”, or “multiple personality disorder”, but “dissociative systems” is actually the term the community tends to prefer. The word “system” is used to describe the collective that lives in the one body, and the term is less pathologising. Many members of the community do not see this as a “disorder”. It is a highly creative and helpful way of dealing with unbearable trauma, usually starting in early childhood, and many members do not wish for it to go away. Attempting to treat it through “integration” is like murder. Continue reading “Dissociative systems (aka Dissociative Identity Disorder)”
My nervous system is on steroids. You don’t know how many times I have Googled that sentence. Not surprisingly, I got another highly sensitive person’s website. But still, I don’t think they quite know the extent of it. People say sensitivity is a wonderful trait, but not sensitivity to this extent. If I could make this go away I would. My nervous system detects threat in everything these days. I have been left with chronic pain radiating down to my fingers from a massage years ago. Recently I started hearing a noise which sounds a bit like an electrical hum or mosquito. I went to the doctor about it a week ago. I wish I didn’t. He poked his instrument in my ears to see if I had an ear infection and my ears have been hurting ever since. Everyone’s confused how such a benign procedure could cause lasting pain. But inserting anything into my body is a huge no I’m realising. My nervous system is totally fucked; it is like having a car alarm that goes off at the slightest touch and doesn’t stop. I have pain receptors everywhere it seems, I can’t sleep, I hear the world ten times louder than most people and am constantly in a fight, flight, freeze, flop, fawn state. My physiotherapist tells me to practice mindfulness but I think it’s a bit beyond that now. I hate being alive. I hate being in this body. I hate being in this world. I’m assaulted by noise even in my own home with dogs barking, neighbours waking me with their violently noisy electric leaf blower, hammering, and basketball game. Saturday night party heads. People are annoying as fuck. Feels like I live in a completely different world to everyone else. Today a friend from high school texted me. She told me her younger siblings have all had babies now. The last I remember of them were when they were school kids, my friend’s younger sister an obnoxious teenager who blasted Big Girls Don’t Cry by Fergie from their chunky desktop computer when I came over to visit them at their old house back in the early 2000s. People my age are starting careers, families and having babies, while I am 32 and have never had a relationship as I am always in survival mode around people and can’t let people get close to me. Feels like the world has moved on while I am stuck in this sickness amber. Trauma does emotionally freeze us at the ages it occurred. People are just wandering around with their heads in the clouds while a subset of the population suffer stuff most people couldn’t even fathom. I just want to go live on a deserted island, or even better another planet. But it’s not going to fix the pain and all the damage that’s already been done. I am depressed and distressed every day and can barely do anything. I suffer for a living. I wish I got paid to breathe. Life is like a turbulent plane ride. As I said in my last post, I have no quality of life and at this point life has become about surviving the days and trying to minimise my distress until I finally die. What is the point in living? I seem to exist just to suffer, and perhaps write a book about it, if I survive long enough for it to get published.
Last night I had the worst sleep. I woke up all the time, interspersed with dreams about my old psychiatrist dying and the feeling that I was dying, something that has become a common experience for me, especially when I try to sleep. I also dreamt about escaping to the countryside, as well as people my age superseding me career-wise and becoming doctors. I dreamt about a girl I used to know in high school. In my dream she had become a psychiatrist and I was helping her run some kind of retreat in the countryside for kids with mental health issues. I was no good with people, and decided I’d be better off caring for the animals on the farm. Continue reading “Excruciatingly sensitive”
“How could Maroondah discharge me like this?” I wrote to my therapist at 5:11AM on Sunday. “I was so depressed I couldn’t even shower or get changed. I wore the same clothes the entire 6 days I was there. I tried to kill myself multiple times on the ward. I was suicidal the day they discharged me. I’ve been mute for a month. Now I’m home I’m trying to medicate the lows with ADD stimulants and now my brain is melting out of my fucking ears. I can’t sleep, I can’t look after myself, I sit on the laptop for 15+ hours straight, day and night and I get headaches all the time. I don’t know what the fuck this is but it’s not just a fucked up personality. But that’s all they see, an annoying bpd bitch who shouldn’t be kept in hospital or else she’ll become dependent. No other patient is treated this way. I feel like maybe there’s something really wrong with me medically. Like my nails break all the time now and I get bruises all over my legs and I have no idea what from. I probably have scarring all over my brain from a lifetime of trauma. They should have organised an MRI for me in the hospital, and they should have made sure I got a quiet room rather than leave me behind a pathetic blue curtain where I was going mental having to listen to everyone else’s conversations. I didn’t get much sleep there either as they were waking me up at 8am every morning to offer me a tablet of olanzapine full of shit like talc and does fuck all for me anyway so I refused it every time and asked them to stop waking me but they kept doing it. So I was kinda glad to go, but I’m not ok.” Continue reading “Descent into madness: The Matrix come to life”
I am writing this post backwards. This short introduction is actually the last thing I’ve written, now that I know what the post looks like. It is a bit of a different post to my usual posts. There are three things I talk about in this post, and I have broken them down into different subheadings as my mind’s all over the place and I’m struggling to write a cohesive piece.
Touch starvation-
Harlow and Zimmerman (1959) were some of the first researchers to show just how important touch is. When given the choice between a wire-mesh “mother” that held a bottle and a soft cloth “mother”, baby monkeys preferred the latter. Touch is the very first way we experience the world and is the foundation for our physical, social and psychological health. Loving, meaningful, consensual touch is important for the following:
Former inmate Brett Collins shares his experience of solitary confinement with ABC, which can be found on YouTube here. The deprivation of human connection and touch, also called “skin hunger”, is essentially a type of torture. It kills, just as physical abuse or starvation kills. And prisoners are not the only people who experience it. You don’t need prison bars to make a prison. Sadly many people in our society are having a remarkably similar experience to Brett Collins. One election some politicians in my country even suggested having a minister for loneliness is it so widespread. A lot of this boils down to the shift from a collective culture to an individualist one. With this shift, we have seen a movement against co-sleeping, where sleeping separately is said to “teach” infants how to manage on their own. Technology is another factor. A lot of people got a taste of touch starvation during lock down. Continue reading “Touch starvation, mania, and dissociation”
“You build me up, you break me down. My heart it pounds, yeah you got me. With my hands up, you got me now, you got that sound, yeah you got me.” Ke$ha – TiK ToK
It is the first time I’ve been able to blog since my last post a week or so ago. It’s felt like the longest week of my life. I feel like I could write a whole book on this week alone. The disturbing saga continues, without resolution, like a piano with endless keys which just get lower and lower.
The psych ward only gave me two nights, even though I asked for longer. They wanted to dump me in a facility called PARC, a non-clinical mental health facility, which people stay in for a week as a “step down” from hospital, or a “step up” from home to prevent a hospital admission. But there were questions about my medical stability. I was barely eating and the hospital wanted to do a blood sugar level test which involves pricking your finger but I was scared of the test so refused it. The nurses said they’d come back in half an hour. I then got in the shower when they came to the door to avoid getting the test done. I was so traumatised in general- by life, by the way they just wanted me out when I was acutely unwell- that I became mute. I am still speculating on what is causing my muteness, which I will discuss later, but whatever it was, I just couldn’t will myself to speak. The day of my discharge one of the doctors came in and told me PARC wouldn’t take me if I wouldn’t speak. I felt like she thought I was being manipulative and could blackmail me into talking. I brought up The Shutdown Dissociation Scale research paper on my phone and showed it to her. One of the symptoms is muteness. There is some more great information about the different responses to trauma on this page.
“We don’t follow that here,” the doctor said.
She said if I didn’t go to PARC they’d just be sending me home. I couldn’t believe it.
“So you’re just going to send me home in this state?” I wrote to her, with gestures of disbelief. “This is discrimination against people with disabilities.”
Becoming non-verbal is common in autism when we become overwhelmed, as is shown in the series Heartbreak High, with one of the autistic characters, Quinni, becoming mute for a while after her horrible girlfriend put her through hell.
“I’ll get your discharge papers ready,” the doctor told me. “Have a good day!” Continue reading “Negligent hospitals, mute, trauma, autistic burn out and the fight for freedom”
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