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borderline-personality-disorder

Negligent hospitals, mute, trauma, autistic burn out and the fight for freedom

“You build me up, you break me down. My heart it pounds, yeah you got me. With my hands up, you got me now, you got that sound, yeah you got me.” Ke$ha – TiK ToK

It is the first time I’ve been able to blog since my last post a week or so ago. It’s felt like the longest week of my life. I feel like I could write a whole book on this week alone. The disturbing saga continues, without resolution, like a piano with endless keys which just get lower and lower.

The psych ward only gave me two nights, even though I asked for longer. They wanted to dump me in a facility called PARC, a non-clinical mental health facility, which people stay in for a week as a “step down” from hospital, or a “step up” from home to prevent a hospital admission. But there were questions about my medical stability. I was barely eating and the hospital wanted to do a blood sugar level test which involves pricking your finger but I was scared of the test so refused it. The nurses said they’d come back in half an hour. I then got in the shower when they came to the door to avoid getting the test done. I was so traumatised in general- by life, by the way they just wanted me out when I was acutely unwell- that I became mute. I am still speculating on what is causing my muteness, which I will discuss later, but whatever it was, I just couldn’t will myself to speak. The day of my discharge one of the doctors came in and told me PARC wouldn’t take me if I wouldn’t speak. I felt like she thought I was being manipulative and could blackmail me into talking. I brought up The Shutdown Dissociation Scale research paper on my phone and showed it to her. One of the symptoms is muteness. There is some more great information about the different responses to trauma on this page.

“We don’t follow that here,” the doctor said.

She said if I didn’t go to PARC they’d just be sending me home. I couldn’t believe it.

“So you’re just going to send me home in this state?” I wrote to her, with gestures of disbelief. “This is discrimination against people with disabilities.”

Becoming non-verbal is common in autism when we become overwhelmed, as is shown in the series Heartbreak High, with one of the autistic characters, Quinni, becoming mute for a while after her horrible girlfriend put her through hell.

“I’ll get your discharge papers ready,” the doctor told me. “Have a good day!” Continue reading “Negligent hospitals, mute, trauma, autistic burn out and the fight for freedom”

This week

I feel like the weather here in Melbourne: all over the place. It is the start of spring and we have had a couple of sunny days, but most of the days are still cold, wet, and overcast. The past two days we have had storms with thunder and lightening. Apparently it even snowed on the mountains.

Sometimes I’ve had the energy to put some effort into my appearance. One night I was watching N3ko Mom’s channel on YouTube. She identifies as an adult baby and also has BPD. Her outfits are art. She pairs cute onesies with beautiful make up. It awakened something in me, and I pulled out the black and white party wig I bought a few months back at the $2 store. I tried it on and it actually suited me. It instantly shifted my mood. I will share a photo of me in the sound-proof box I sleep in wearing the new hair. I am with my clowns, which I bought to nurture my inner child. I had two clowns just like these when I was a toddler. Their names were Coco and Noddy. I took them everywhere with me. I think my mum threw them out, but I managed to find some just like them online (they are now considered vintage). The clowns and I are starting to look alike.

IMG_6852

Continue reading “This week”

Something I can never have

I think a lot of people can relate to wanting to be someone else. If emotions were paint colours, what I’m feeling right now would be a mixture of red hot anger and cool blue sadness, making it purple. I guess you’d call this feeling jealousy. A therapist I saw ten years ago told me that there are no bad emotions and all emotions have a purpose. Jealousy shows us what it is we want. It is like the Mirror of Erised in Harry Potter, showing us “the most desperate desire of a person’s heart, a vision that has been known to drive men mad.” Continue reading “Something I can never have”

Chase me and leave me alone: the paradox

dont get attached

I am both in pain and emotionally dead. I don’t know how I can be in so much pain and so empty at the same time. I guess the pain doesn’t fill me, but consumes me. It is hard to write in this state. Nothing will take this awful feeling away. Continue reading “Chase me and leave me alone: the paradox”

Today’s update: finding myself

Every day I get urges to kill myself. Last night I called Lifeline. I actually found the lady who picked up really helpful. She was horrified by my psychologist’s behaviour and said she shouldn’t be practicing. Something I’ve learnt about Lifeline is they are there for anyone in distress and needing someone to talk to, you don’t have to be suicidal. Today when I woke up I called Blue Knot, a helpline for those with childhood trauma. They offer free, weekly 45 minute counselling sessions, though it’s a different counsellor each time. I’ve been meaning to check them out. I didn’t find the lady as empathetic and am not sure I will call them again next week.

I’ve been thinking a bit about my combination of personality disorders today. Each personality disorder is basically a defense strategy we develop to deal with trauma and pain. I have what might seem like an odd combination: BPD and Schizoid Personality Disorder. It is like having two people in my head arguing.

“You should have listened to me and never got involved with that psychologist”, Schizoid brags.

“I was right all along. Psychologists are dangerous. Attachments are dangerous. The only person you have and can rely on is yourself.”

But Borderline has a real need for attachment. The monochrome life of the Schizoid is unbearable.

The worst thing for Borderline is abandonment and loss. The worst thing for Schizoid is contact and suffocation. The two are constantly at war, and I struggle to find a middle ground. Continue reading “Today’s update: finding myself”

I Went Too Far by Aurora

I’d like to churn out one more post before I call it a night. This post is another song interpretation. This song is called “I Went Too Far” by Aurora, and it is my new favourite song and anthem right now.

This song is about being desperate for love. Love is a very human need, but some of us are so deprived of it that we will go to great lengths to get it. As a person with BPD (and a love addict), I relate so much to this song. One of the criteria for BPD is frantic efforts to avoid real or imagined abandonment. That is what this song is all about. We throw away our dignity, begging for this person to show us some love and not leave us. Some people with BPD will go as far as injuring themselves as they are in so much pain and distress. This is what Aurora means when she says she “went too far”. I have at times scratched myself and tried to overdose right in front of people in attempts to get them to just acknowledge my humanity and give me care. It’s sad we have to go to this extent, but in a cruel, heartless world and a broken healthcare system often this is what it takes to get people to do something. Continue reading “I Went Too Far by Aurora”

Sleeping beauty: overdose

In the autistic community we congratulate people when they get their diagnosis. Autism is now seen as a neurodivergence, a difference in the way our brains work, rather than a pathology. But there are many times I wish I was not autistic. There are times when it really does feel like a curse, far from something to be celebrated. There are times when, if I could take it away, I would. It is no fun being this severely autistic in this world. Continue reading “Sleeping beauty: overdose”

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