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Update: depression, insomnia, fashion, gut issues, annoying neighbours, losing things, favourite person

“For I am finding out that love will kill and save me
Taking the dreams that made me up
And tearing them away
But the same love will take this heart that’s barely beating
And fill it with hope beyond the stars
Only love”

– Trading Yesterday, “The Beauty & The Tragedy” 

I struggle to remember the past few weeks, but I do know that I haven’t been sleeping and my stomach still won’t shut up. Sometimes it sounds like water gurgling down the bathtub drain, other times like a creaking door or like my stomach is full of frogs. Every little thing is agonising; just filling a glass of water feels like running a marathon. I’m angry all the time, I want to cry all the time yet all the tears are stuck inside, and I’m exhausted. Yet I do feel the sun peaking through the clouds a bit more. My mood is slightly better, I’m a bit more active, I’m playing badminton again, my physio is ridiculously nice and patient, my mum has been kindly making me meals that comply to my new diet, and I have been commissioned by my favourite vegetarian restaurant to take some photos of the place. The restaurant is run by a couple who are also neurodivergent. They really get me, and always seat me in the quietest spot away from everyone else. They gave me some times when the restaurant will be empty for me to take the photos, which is great as I get flustered around other people. Continue reading “Update: depression, insomnia, fashion, gut issues, annoying neighbours, losing things, favourite person”

Damien

“I’ll stand by you
I’ll stand by you
Won’t let nobody hurt you
I’ll stand by you
Take me in, into your darkest hour
And I’ll never desert you
I’ll stand by you”

– The Pretenders – I’ll Stand By You

I sit here blowing tissues and a few tears escaping my rein, still tormented by my body. Last night I had a dream about Damien, my disability worker who told me he thought I’d become too dependent on him and wanted to cut back on our sessions. I have written a few posts about him, such as “Everything good turns to shit“, where he basically destroyed my stay in a private hospital. He was repeating the trauma of all my other workers. He was distorting everything I’d told him. When we were in the car once I was talking about the importance of disability workers, where, for some clients, it’s their only contact with the world and they see them more than anyone else in their life. Damien seemed to worry he was stopping me from seeing my friends, which is not true. Since he’s been on leave, I have not seen more of my friends. Continue reading “Damien”

Update: physical issues and writing from age 13

beach walk

I thought I’d write a quick post. Nothing particularly eventful has happened, just the same old shit. My physical and mental issues continue to wear away at me, like water eroding rock. I have a new buzzing sensation on my left ankle and the same buzzing sensation on my head which I’ve had for years now since taking Effexor. Yesterday the buzzing and my tremor were particularly bad for some reason. I still managed to upload some new badges to my etsy site which a friend designed. So it was a torturous yet productive day. I can barely do anything these days. I can’t clean up, and there is now a funky smell in my bedroom. Now that I’m not seeing my disability support worker, who used to get me out of the house twice a week, I have nothing to get up for all week. I rarely get dressed or leave the house and when I’m not sleeping I just sit at the computer. I sit on the computer all night as I procrastinate brushing my teeth and going to bed. I then take meds at sunrise so I can sleep. On Christmas at around 9am I took some diazepam and 10mg of olanzapine, the drug I have just weaned myself off from. It seemed to do the trick and I slept all day until 8:30pm. I slept through the picnic my family had planned. So I had no Christmas, but I wouldn’t want it any other way. I hate Christmas and was glad to sleep through it. Continue reading “Update: physical issues and writing from age 13”

Shopping addiction: rock bottom

This isn’t going to be a long post as it’s 1:10 AM and I need to try and sleep. The past few nights I’ve been sitting up all night shopping online. My shopping addiction has reached an all time low. Only people who have suffered addiction would understand how crazy and out of control you feel. It’s reached a point where what was initially something that made me happy is now destroying my health, destroying my bank account and destroying my life. My eyes were blood shot. I fell asleep around 10 AM today and when I woke up at 3 PM there are no words for how dreadful I felt physically and mentally. On top of all my other issues such as my tremor I was breathless, nauseous, in pain, my eyes were burning and my nerves were buzzing. I knew I had to do everything in my power to turn this around. I just feel so hopeless about all the damage the mental health system and psychiatric drugs have done to me that I just let myself go. It’s now been half a year since my overdose and I’m still suffering. I can’t lie on my right side as my pulse pounds like a ticking clock in my ear. I feel a great deal of sadness about what I did to my body that night. If I could take it all back I would. I really beat myself up over it. But I try to tell myself that it wasn’t my fault. That I can’t help this. That I’m unwell, and the mental health system let me down. The overdose may have been prevented if I had of been admitted to hospital when I presented to the emergency department earlier that week. But unfortunately I have a diagnosis in my file that I wish I’d never received. Once you are diagnosed with Borderline Personality Disorder (BPD), you are discriminated against by hospitals and mental health professionals. People don’t want to work with you or give you an admission, even when we have many other co-morbid physical and mental health issues. If you do get an admission they won’t let you stay more than 48 hours. You receive substandard care. This is something that’s been documented in research literature. One study by Gemillion (2003) looked at those with eating disorders.  After being marginally, physically stabilized, patients who also had a diagnosis of BPD were removed from the ward in favor of caring for other patients who were seen to be truly sick rather than manipulative. These patients with BPD met all of the same markers for anorexia as other patients, but their anorexia was labeled as a form of acting out for attention, rather than a form of sickness, as it was for other patients. Despite identical physical markers, patients labeled with BPD were then denied care because they weren’t actually sick, even though the diagnosis of anorexia was otherwise made based on physical markers. Patients with BPD must meet standards of illness above other patients. Continue reading “Shopping addiction: rock bottom”

This week

I feel like the weather here in Melbourne: all over the place. It is the start of spring and we have had a couple of sunny days, but most of the days are still cold, wet, and overcast. The past two days we have had storms with thunder and lightening. Apparently it even snowed on the mountains.

Sometimes I’ve had the energy to put some effort into my appearance. One night I was watching N3ko Mom’s channel on YouTube. She identifies as an adult baby and also has BPD. Her outfits are art. She pairs cute onesies with beautiful make up. It awakened something in me, and I pulled out the black and white party wig I bought a few months back at the $2 store. I tried it on and it actually suited me. It instantly shifted my mood. I will share a photo of me in the sound-proof box I sleep in wearing the new hair. I am with my clowns, which I bought to nurture my inner child. I had two clowns just like these when I was a toddler. Their names were Coco and Noddy. I took them everywhere with me. I think my mum threw them out, but I managed to find some just like them online (they are now considered vintage). The clowns and I are starting to look alike.

IMG_6852

Continue reading “This week”

Something I can never have

I think a lot of people can relate to wanting to be someone else. If emotions were paint colours, what I’m feeling right now would be a mixture of red hot anger and cool blue sadness, making it purple. I guess you’d call this feeling jealousy. A therapist I saw ten years ago told me that there are no bad emotions and all emotions have a purpose. Jealousy shows us what it is we want. It is like the Mirror of Erised in Harry Potter, showing us “the most desperate desire of a person’s heart, a vision that has been known to drive men mad.” Continue reading “Something I can never have”

I Went Too Far by Aurora

I’d like to churn out one more post before I call it a night. This post is another song interpretation. This song is called “I Went Too Far” by Aurora, and it is my new favourite song and anthem right now.

This song is about being desperate for love. Love is a very human need, but some of us are so deprived of it that we will go to great lengths to get it. As a person with BPD (and a love addict), I relate so much to this song. One of the criteria for BPD is frantic efforts to avoid real or imagined abandonment. That is what this song is all about. We throw away our dignity, begging for this person to show us some love and not leave us. Some people with BPD will go as far as injuring themselves as they are in so much pain and distress. This is what Aurora means when she says she “went too far”. I have at times scratched myself and tried to overdose right in front of people in attempts to get them to just acknowledge my humanity and give me care. It’s sad we have to go to this extent, but in a cruel, heartless world and a broken healthcare system often this is what it takes to get people to do something. Continue reading “I Went Too Far by Aurora”

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